PKS Kids
Education~Awareness~Support for those affected by Pallister-Killian Syndrome
PKS Worldwide
PKS is not limited to any geographic location. We know of cases in the following states and countries:
Please see interactive map below also.
Alabama | Arizona |
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Colorado |
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| Florida | Georgia |
Hawaii |
| Illinois | Indiana | Iowa |
| Kentucky | Louisiana |
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| Minnesota | Mississippi | ||
| Nebraska |
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| New Jersey |
| North Carolina |
| Ohio | |
Oklahoma |
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| South Carolina | |
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| Texas | Utah |
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Virginia |
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| Wisconsin |
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Ontario | Alberta | Italy | Scotland | Netherlands |
England | Hong Kong | Argentina | Mexico | |
Germany | China | Spain | ||
Chile | New Zealand | Nova Scotia | Poland | Japan |
Brazil | Denmark |
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If a state is listed in red, it means there is a family listed there who is happy to be a contact for others. Feel free to get in touch with that family. Please keep checking back for more state representation. Also, if you know of a location not represented here, please email us!
View Larger Map
EQUIPMENT COMPANIES and MISC
Theratogs available at www.theratogs.com
Jenx at www.jenx.com
Adaptive Mall at www.adaptivemall.com
The Sleep Safe Bed company at www.sleepsafebed.com
Bibs and Bed Liners: something-sew-special.com/store
For maximum support for AFO's, consider these orthopedic shoes.
Hatchbacks
www.hatchbacksfootwear.com
800-936-0511 (Ore.)
Keeping Pace
www.keepingpace.com
888-526-0020 (Mass.)
Markell Shoe Company
www.markellshoe.com
914-963-2258 (N.Y.)
CATALOGS AND ONLINE STORES
Abilitations at www.abilitations.com
Beyond Play at www.beyondplay.com
Enabling Devices at www.enablingdevices.com
Different Roads to Learning at www.difflearn.com
Playworks at www.playworks.net
Sammons Preston at www.sammonspreston.com
Special Needs Toys (TFH) at www.specialneedstoys.com/usa
***They have an excellent swing for our toddlers!
The Therapy Shoppe at www.therapyshoppe.com
Therapro at www.therapro.com
Achievement Products at www.specialkidszone.com
SCHOOLS AND THERAPIES
Texas School for the Blind and Visually Impaired at www.tsbvi.edu/index.htm
***Excellent books for parents and therapists. Especially the one called "Impact of Vision Loss on Motor Development"
Hippotherapy at www.americanhippotherapyassociation.org
Active Learning at www.lilliworks.com
*** Check out the "Little Room" for visually impaired children
Body Brushing Therapy at www.henryspink.org/brushing_therapy.htm
Therapeutic Listening at www.abilitiesinfo.com/therapy_listeningsensoryint.html
Sensory Integration Therapy at www.moddrc.com/information-disabilities/fastfacts/sensoryintegration.htm
Sensory Learning at www.sensorylearning.com
***Posting of these therapies does not suggest that a child will benefit from them. Please work with your doctors and therapists to tailor a plan for your child.***
RECORDS, LEGAL INFO, MISC
Care Notebook at www.cshcn.org/resources/carentbk.cfm#Complete
Care Notebook #2 at www.medicalhomeinfo.org/tools/care_notebook.html
