PKS Kids

Education~Awareness~Support for those affected by Pallister-Killian Syndrome

PKS Worldwide

PKS is not limited to any geographic location.  We know of cases in the following states and countries:

 

Alabama

 Alaska

 Arizona

  

California

  Colorado

  

  

 Florida

  

 Hawaii

  

 

 Indiana

 Iowa

  

  

 Louisiana

  

 

  

Michigan

 Minnesota

 Mississippi  

 Missouri

  

 Nebraska

 

  

 New Jersey

  

 New York

 North Carolina

  

 Ohio

 

 

 Pennsylvania

  

 South Carolina

  

 

 Texas

  Utah

  

 Virginia

  

  

 Wisconsin

  

 Ontario

 Alberta

 Italy

 Scotland

 Netherlands

Australia

 England

Hong Kong

Argentina

Mexico

Germany

China

 Spain

New Brunswick

Ireland

Nairobi,Kenya

 

 

 

 

 

 

 

 

 

         
         
         
         

If a state is listed in red, it means there is a family listed there who is happy to be a contact for others.  Feel free to get in touch with that family.  Please keep checking back for more state representation.  Also, if you know of a location not represented here, please email us!               

 

EQUIPMENT COMPANIES

Theratogs available at www.theratogs.com

Jenx at www.jenx.com

Adaptive Mall at www.adaptivemall.com

The Sleep Safe Bed company at www.sleepsafebed.com

 

CATALOGS AND ONLINE STORES

Abilitations at www.abilitations.com

Beyond Play at www.beyondplay.com

Enabling Devices at www.enablingdevices.com

Different Roads to Learning at www.difflearn.com

Playworks at www.playworks.net

Sammons Preston at www.sammonspreston.com

Special Needs Toys (TFH) at www.specialneedstoys.com/usa
    ***They have an excellent swing for our toddlers!

The Therapy Shoppe at www.therapyshoppe.com

Therapro at www.therapro.com

Achievement Products at www.specialkidszone.com

SCHOOLS AND THERAPIES

Texas School for the Blind and Visually Impaired at www.tsbvi.edu/index.htm
   ***Excellent books for parents and therapists.  Especially the one called "Impact of Vision Loss on Motor Development"

Hippotherapy at www.americanhippotherapyassociation.org

 

Active Learning at www.lilliworks.com
   *** Check out the "Little Room" for visually impaired children

Body Brushing Therapy  at www.henryspink.org/brushing_therapy.htm

Therapeutic Listening  at www.abilitiesinfo.com/therapy_listeningsensoryint.html

 

Sensory Integration Therapy at www.moddrc.com/information-disabilities/fastfacts/sensoryintegration.htm

 

Sensory Learning at www.sensorylearning.com

 

***Posting of these therapies does not suggest that a child will benefit from them.  Please work with your doctors and therapists to tailor a plan for your child.***

 

RECORDS, LEGAL INFO, MISC

Care Notebook at www.cshcn.org/resources/carentbk.cfm#Complete

Care Notebook #2 at www.medicalhomeinfo.org/tools/care_notebook.html

Estate Planning, Special Needs Trusts at www.snapinfo.org

 

EARLY INTERVENTION

State EI information at http://eis.harkit.com/states.html