PKS Kids

PKS Kids^TM was started by a small group of parents in 2006.  Their purpose was to promote Pallister-Killian Syndrome and raise awareness through this non-profit organization.

 PKS Kids'^TM Board of Directors

Dawn Bergquist, Chairperson

Dawn lives in Greencastle, PA with her husband, Eric and three children. Her youngest child, Aidan was born with PKS in 2004. Dawn has an undergraduate degree in Elementary Education and a MEd from The University of Virginia in Administration/Supervision. Before choosing to stay home and care for her family, she taught kindergarten for several years. Her hope is that PKS Kids will help to ensure early diagnosis for all children with Pallister-Killian Syndrome in hope that by receiving intervention at a young age they may enjoy a longer, healthier and happier life with the ones that love them.

Mike Zane, Vice-Chairperson
Michael is Vice President of Audience Development for CMP Technology, a
marketing solutions company serving the technology industry. He graduated from
the University of Maryland at College Park with a degree in business management.
Michael has been involved in the media business for over 17 years and currently
oversees a department of 32 people recruiting audiences for publications, live
and online events, email newsletters and gated online communities.
Michael lives in East Islip, New York with his wife Nicole, also actively
involved in PKS Kids^TM, and 3 kids. Jake, diagnosed with PKS is 3 years old. Jake
is the big brother to a sister, Kayla and brother, Brandon, who are 20 month old
twins.

Cammie Gray, Treasurer

Cammie Gray is married and has 4 children. Cammie worked eight years at a mental health insurance company and six of those years were spent in the Purchasing/Finance department.  Her third child has Pallister-Killian Syndrome. After looking for 2 years for the reason her child was having problems and not knowing what was wrong, she knows the importance of educating the medical community about PKS.  She has very high hopes for the success of this organization.       

 Gretchen Peters, Secretary
Gretchen’s youngest child, Simon, was born in 2004 with Pallister-Killian Syndrome.  Not having informational resources to help her deal with the diagnosis, Gretchen was determined to help others navigate through the world of PKS.  To update friends and family, she created a website for her son and she's thrilled to know that it has been the first point of information for several families.  Not wanting to stop there, she hopes that PKS Kids^TM will help to make information about Pallister-Killian widely available for those who are still searching.  Gretchen lives in Marshall, MI with her husband Jim and children, Alex, 16; Emily, 14; Maddy, 8; Natalie, 3 and Simon, 2.  She may be reached at gretchenpkskids@sbcglobal.net.

Additional board members:
 

Medical Advisory Chair:  Dana Paglia

Finance Chair: Cammie Gray

Education & Promotions Chair:  Gretchen Peters 

Member-at-Large: Kate Hettiger