PKS Kids
Education~Awareness~Support for those affected by Pallister-Killian Syndrome
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48 Comments
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02:38 AM on February 08, 2010
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Gretchen
09:48 AM on October 31, 2009
Levi, please write me directly if you want--- gpeters@pkskids.net. There is no need to even think that she will die in a few weeks. I'd like to get more info from you on what is wrong and why the doctors think that.
Thanks. Gretchen
Thanks. Gretchen
Levi says...
Hi I'm Levi Pawnee my baby cuzin has been born for 4 weeks and she has pks and other terms that I can't say well they think she will be dyeing in a couple weeks what should we do should just let her go or keep her with us for a little bit longer?
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Levi
04:28 AM on October 31, 2009
Hi I'm Levi Pawnee my baby cuzin has been born for 4 weeks and she has pks and other terms that I can't say well they think she will be dyeing in a couple weeks what should we do should just let her go or keep her with us for a little bit longer?
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Daniela Rocha Dias
01:49 AM on October 17, 2009
Olá meu nome é Daniela e tenho uma filha de 03 anos chamada Daniely Camily que tem pallister killian, moro aqui no Brasil, não temos recursos pois a medicina aqui deixa a desejar, faço o que posso para ver minha filha cada vez melhor, mas tá dificil, até agora não faz fisioterapia porque nos hospitais publicos não tem, só particular e eu não tenho condições financeiras somos pobres, mas o que tá ao meu alcance eu faço por ela.
Obrigada por esclarecer sobre o pallister, sem mais
Daniela Rocha Dias
Obrigada por esclarecer sobre o pallister, sem mais
Daniela Rocha Dias
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Cherri
10:35 PM on October 08, 2009
Don't know what drove me to look for your site. What a great resource! I am in awe when I look at all the beautiful faces of the children. My daughter, Jordan Elizabeth, was born with PKS in Dec 1999 and lived for only 6 hours. I can only imagine the daily struggle caregivers must go through but you are all truly blessed with very special children. Cherish every day, you are all in my prayers!
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Jenee
10:50 PM on October 01, 2009
I am a caregiver to a child with PKS. This website was very helpful for me to see and learn more about PKS.
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Lori Farris
01:41 PM on September 22, 2009
This is a very nice and helpful website. I am a teacher of visually impaired children and I met a little boy with PKS last week. Thank you.
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james y brenda
12:15 PM on September 03, 2009
hello, is good that this is possible keep it going thank you
