PKS Kids

This is exciting news for PKS Kids and the families!  Please visit this link for the survey and more information:

http://www.pkskids.net/medicalinfoandresearch.htm

June 26-June 28, plan on joining the fun in St. Louis, MO as we get together for a casual weekend of friendship and sharing.  MARK YOUR CALENDAR NOW!

********Great news! Dr. Krantz from CHoP will be attending to see children, take samples, and go over medical questionnaires. You must complete a form for Cammie and Kate.******  Contact Cammie at camgray01@yahoo.com

SHERATON WESTPORT HOTEL
Lakeside Chalet ¨ 191 Westport Plaza ¨ St. Louis, MO 63146 (314) 878-1500 ¨ Fax (314) 212-2180

Individual Call-In (Please tell them its for the PKS Kids Reunion)
Individual reservations can be made by calling the Hotel at 314-434-5010 or by calling toll free at 1-800-822-3535. Rooms will be held until the cut-off date listed above.

All reservations must be received on or before June 5, 2009. Reservations received after this date will be subject to room and rate availability. Room rates are 85.00. If you'd prefer a King bed vs. 2 doubles, let them know and they reserve that for the same rate.

Hi everyone!

Melissa V. from Indiana is holding an Avon fundraiser for PKS Kids. Melissa lost her son, Clayton, to PKS about 4 years ago and the cause is very dear to her.

Go to www.youravon.com/mvanlaningham . Make sure it has Melissa's on that web page. The free shipping code is FSANY and you can have it shipped to your home. Thanks so much for your help. Anyone that wants to help, that would be so wonderful. We have until March 3rd.

And thanks to Melissa for offering this!!!!

PKS Kids Giving Grant

Research information from Dr. Ian Krantz

Newsletters (at the bottom of the Medical information page)

Maddy Peters has a little brother with Pallister-Killian Syndrome.  Her Fourth Grade class met Simon and learned more about his syndrome and they chose to also make a donation to PKS Kids. Thanks kids and Mrs. Weaver!!

We are filling 2-3 board positions this fall and are looking for help from interested parents, medical professionals, family members, etc. PKS Kids exists for all and needs committed volunteers to continue its success!  Please complete the form below and mail or email it to dbergquist@pkskids.net.

Serving on the board would require you to attend one meeting per month via conference call from 7:30pm-9pm (eastern standard time) beginning in October 2008 and participating in as many ways as you can. (Fundraising, grant-writing, organizing the medical conference, etc) You would serve as a member of the board for a minimum of 3 years. If you have any questions, please feel free to email onebuddy@comcast.net (Dawn Bergquist-President PKS Kids)

http://www.pkskids.net/PKS Kids board interest form.doc  (Word)

http://www.pkskids.net/PKS Kids board interest form.pdf (PDF)

Cammie Gray, board member of PKS Kids is holding two fundraisers in her area in July.  

The first is a 12 hour scrapbooking event on July 19th

Click here for complete details and registration.

The second is a Longaberger Basket Bingo.  Register and read complete details here.

Please contact Cammie (camgray01@yahoo.com) for participation information.

PKS Kids would like to thank the Knights of Columbus #5999 for their donation of more than $1300.00 to PKS Kids.  These funds were raised through the Knights annual Tootsie Roll drive for handicapped children.

Pictured below is Gretchen Peters accepting the check from Knights Gus Groat and Tim Fitzgerald. 

Perhaps the Knights in your parish or community would be willing to make a donation to PKS Kids.  Let us know if you need help facilitating this.